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  • Author
    Tae Butler
  • PI

    Theodore Moore, MD

  • Co-Author

  • Title

    Clinical Ethnographic Research in Pediatric Hematology-Oncology: A Preliminary Solution to Improve the Pediatric Cancer Experience

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  • Other Program (if not listed above)

  • Abstract

    Each year, the parents of approximately 16,000 children across the United States will hear the words “your child has cancer.”  For most, these four words ignite fear, anxiety, and anger, because across all ethnic and socioeconomic lines, cancer remains the number one cause of death by disease for children in the United States. While the physical treatment for cancer is unforgiving, the psychosocial effects that a child and their loved ones experience can be devastating. Approximately 73% of pediatric cancer survivors experience post-traumatic stress symptoms (PTSS) and 99% of families of survivors have at least one member experiencing PTSS. Therefore, I identified a means to improve the psychosocial effects that come with the pediatric cancer experience. Under the supervision of Dr. Theodore Moore, MD in the Pediatric-Hematology Oncology clinic at UCLA, I validated the need for such an intervention with stakeholder interviews and clinical observation in concordance with the biodesign process from the Sling Health Summer Biodesign Program. 42 hours of ethnography were conducted over 6 weeks, with 4 different types of stakeholders interviewed in order to refine and validate the initial proposed need. This project is currently ongoing and future directions include a clinical study with the current preliminary solution concept to be conducted within the same clinic. 

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